For Yuna: OHSU scientist reveals origins of daughter’s rare condition

Study findings could lead to new treatment options for FOXG1 syndrome

By Tracy Brawley November 07, 2018 Portland, Oregon

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Yuna Lee, born in 2010, was diagnosed with FOXG1 syndrome, a mutation of one of the very genes that her parents have been studying for decades. (Courtesy of the Lee family)

FOXG1 mutation

Soo-Kyung Lee, Ph.D., with her daughter Yuna, born in 2010, who was diagnosed with FOXG1 syndrome, a mutation of one of the very genes that Lee and her husband have been studying for decades. (Courtesy of the Lee family)

FOXG1 research

Soo-Kyung Lee, Ph.D., and her husband Jae W. Lee, Ph.D., study genes that are integral to the development and function of organs such as the heart and brain. This work became more personal when their daughter Yuna, (right) born in 2010, was diagnosed with FOXG1 syndrome, a mutation of one of the very genes that the couple have been studying for decades. (OHSU/Kristyna Wentz-Graff)

FOXG1 research

Soo-Kyung Lee, Ph.D., and her husband Jae W. Lee, Ph.D., study genes that are integral to the development and function of organs such as the heart and brain. This work became more personal when their daughter Yuna, born in 2010, was diagnosed with FOXG1 syndrome, a mutation of one of the very genes that the couple have been studying for decades. (OHSU/Kristyna Wentz-Graff)